This past week has left me with more questions than answers. Will this progress? Will treatment help? What kind of treatment should I go for next? Will I be able to work again? Should I reapply for disability benefits now, or wait? Will I have a normal life expectancy because I do not have the anti-GAD and anti-amphiphysin antibodies?
My next follow-up isn't for another month. I think that I'll call the doctor's assistant to see if we can get the ball rolling on treatment before then. I think that I'd like to try ivig and/or plasmapheresis, but I have horrible veins. Will I need a medi-port? Not quite sure...but it is a strong possibility.
Right now I could really use prayers and hugs and love. So if you see me, pull me in and hug me. I'm going to get through this - but I need my family and friends more than I ever have. I'll let my favorite troubadour play us out...
My next follow-up isn't for another month. I think that I'll call the doctor's assistant to see if we can get the ball rolling on treatment before then. I think that I'd like to try ivig and/or plasmapheresis, but I have horrible veins. Will I need a medi-port? Not quite sure...but it is a strong possibility.
Right now I could really use prayers and hugs and love. So if you see me, pull me in and hug me. I'm going to get through this - but I need my family and friends more than I ever have. I'll let my favorite troubadour play us out...
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