I'm beyond frustrated today, and all because I can't find anyone that has their act together. I have been in the middle of a flare up with painful ulcers in my mouth, migraines, random fevers, and spasms for over two weeks now. I tried a steroid pack with no relief. I NEED to get IVIG so that my body will calm down. It took over a week to get a call back in the first place, and now after a week of getting no answers from the infusion center, I'm told I need to go in to see my doctor. Why? Nobody will tell me.
I haven't taken any tests since then, and I have no freaking clue why I need to readdress a treatment plan that is already established. I have to go downtown tomorrow while I feel like crap and would rather stay in my bed all day. I hate going to the doctor's office. Mercy has treated me okay, but Kaiser treated me like a sack of dog poop. I have serious anxiety issues, and it is hard to handle anything medical because of it. I got pushed around and was told so many times that I was crazy, making things up, exaggerating, that I needed to just move on, etc. Nobody will tell me why I need to go in, and that is not making things better. I could have had the treatment and been feeling 10x better by now. But no. Of course not. Nothing goes as planned for me.
No comments:
Post a Comment